top of page
small black transparent ce logo.png
Search

Sept 17 - 2nd second opinion and chemo training

Writer: neileuliano
neileuliano
2 days ago
1 min read

Had the second second opinion from Sloan Kettering today. Same story - they agree with the plan at UF and don't think that radiation therapy is valuable. This cancer is rare and there isn't any direct research on it -- so they generally follow the protocols for pancreatic cancer. Not alot of treatment options here, but at least we can do it from home where we have LOTS of support.


We also had chemo training today (chemo starts next thursday) -- 2 hours of discussion of possible side effects and problems is somewhat difficult to listen too, but the nurse was extremely nice and caring and said at least 30 times -- if you have any problems or have any questions, just call us, we are here 24/7.


Tammy continues to improve from her surgeries, although it seems to always be 1 step forward and 1/2 step back. We are up to about 2 good days followed by a not good (but not horrible) day. Catherine is here and Erin will be here tomorrow for a weekend of wedding dress shopping.


Want to thank everyone who has been so kind to Tammy and the rest of us. It is amazing how many people love and care for her. I'm including a picture since I haven't included many recently. Just Matt and Tammy after completing a puzzle someone sent. By the way, she does more than puzzles, yesterday was a good day and she rode the stationary bike and the rower and walked about a mile...we just don't take pictures while she is doing that.


 
 
 

Recent Posts

See All
Chemo scheduled and "port" put in today

The under-skin chemo port was surgically implanted today in a small procedure this morning. It was relatively quick surgery and we were home by 11am or so. All went well, but the whole process was kin

 
 
 
First "2nd opinion" agrees with UF plan

We received our first 2nd opinion today from Harvard Dana Farber (reviewed tests and sent us a pdf). It basically agreed with the current UF plan to do 6 months of chemo. Second 2nd opinion with Sloan

 
 
 
September 7th update

Tammy is recovery gradually from surgery. Biggest issue now is trying to get enough nutrition when your body still doesn't move food well through your system and your not hungry. She is good for a whi

 
 
 

Comments


© 2018 by Convergent Engineering

bottom of page